28 February, a day in progress

Status:A day of rest and preparation. I’m in a Hilton hotel for the day. I have to pack what I need to operate the system for a 24 hour shift.

Narrative:I managed to get my room configured so that all my data flows encrypted to Atlanta. My cell phone connects wirelessly and the laptop is an Ethernet connection.

Had an awesome breakfast and logged into my company E-Mail. No issues thus far using Linux Mint for my corporate requirements.

Updated my blog and sent links to the family. It has been a while since i blogged. Choosing what to write about and how much detail to go into is a challenge for me. A time blog is also pretty boring, still this is to keep me close to my lovely wife.

I had a good dinner with the departing team members but I stayed up too late which made getting up a bit harder.

Tomorrow:Operate a remote site for 24 hours and repair it if necessary.

Feeling words… Edgy, Sore, Confident, Valued, Youthful.

https://www.verywellfamily.com/feelings-words-from-a-to-z-2086647

From the book “Triggers” by Marshall Goldsmith
Did I DMBT set clear goals for the day? No
Did I DMBT make progress to those goals? No
Did I DMBT make my wife feel loved? Yes
Did I DMBT help my wife today? Yes
Did I DMBT fix something today? Yes
Did I DMBT improve something today? Yes
Did I DMBT be happy? Yes
Did I DMBT be fully engaged? Yes
*Did My Best To
Injuries: Arguments: Exercise: Feeling words: Travel: Noteworthy: Accomplishments: Purchases: Project: Theme: Engineering: Repairs: Pi News:

27 February, a Day in Progress

Status:Flew to Liberia Costa Rica and got a room at the Hilton Garden Inn near the airport.

Plans:Recover from the previous day and get caught up on what the team is thinking.

Narrative:Had a really rough day, it started when I woke up at 3AM still feeling the effects of the pill i took yesterday.

I finished packing my bags for the trip to Liberia today and i started feeling sick to my stomach. I ended up having dry heaves because the nausea was so bad.

Do I go, or stay a day and recover? (That was my question i wrestled with all the way to the airport ticket counter.)

Limo driver was on time and no issues getting to the airport at 06:00 in the morning. Checking my bags was also easily accomplished even though one of my bags was overweight at 51 Lbs.

No issues with Security or getting to the gate, i was a bit early being there 07:00. I did not feel good enough to eat without risking getting sick on the plane. I bought a $3 coke and a bag of plain M+Ms just in case I had to eat something in the next seven hours before I get to the hotel.

Boarding was uneventful and i managed to catch a few Zs during the flight. Customs and Immigration at Liberia airport was also uneventful.

The guys took us to the store and we picked up some odds and ends to make our stay comfortable. I wanted a rotisserie chicken but they looked overcooked with blackened skin.

Back at the hotel things didn’t go so well. The fridge was warm, the Internet wire did not work and the phone was also out of commission. I had to walk my happy butt down to the counter to get them fixed. (TWICE)

Finally got enough nerve to eat a meal. I headed over to the bar, ordered a beer and Salmon dinner that i had gotten on a previous trip. It was good, i enjoyed the dinner and the two Guard Folks with me.

Headed back to the room and the fridge was working. I loaded the cokes I bought and started working on the Internet connection.

There is a wall Internet Ethernet connection in this hotel room. What I failed to observe is that the wire i was using was connected to a non functioning port on the wall. No issues with the Wireless the GL.iNET routers. Nor did I have any issues with the VPN back to the house. I fought the Internet Wired connection for about half an hour before I realized it didn’t work at the wall. Plugged the router into the other port and I was good to go.

Hotel VPN Network setup

My primary travel CPAP did not work when I powered it up and I had an A.S. moment because I hadn’t tested the backup travel CPAP in years. These are not optional, i’ve tried! The CPAP rolled off the bed while I was breaking out the backup. When I powered up the backup it worked! The primary also worked after getting bounced on the floor.. Good do go, sheesh

Took a 4 hour nap and started writing in this blog. Took a minute to get reacquainted with WordPress and the format, but i’m back in the saddle. I was looking aroung for something to sip on and found a small coffee maker. Okay, no instructions and three tries later I had a hot cup of coffee. M+Ms go very well with hot coffee.

Engineering: Downloaded new Open VPN files to configure the GL.iNET routers so that they reach into my home network.

Tomorrow:Catch up on where the team is and where they are headed. Breakfast at 06:30 and i’ve not gotten enough sleep yet.

Feeling words:Anxious,unsettled,lonely

https://www.verywellfamily.com/feelings-words-from-a-to-z-2086647

From the book “Triggers” by Marshall Goldsmith
Did I DMBT set clear goals for the day? No
Did I DMBT make progress to those goals? No
Did I DMBT make my wife feel loved? Yes
Did I DMBT help my wife today? Yes
Did I DMBT fix something today? Yes
Did I DMBT improve something today? Yes
Did I DMBT be happy? Yes
Did I DMBT be fully engaged? Yes
*Did My Best To
Injuries: Arguments: Exercise: Feeling words: Travel: Noteworthy: Accomplishments: Purchases: Project: Theme: Engineering: Repairs: Pi News:

6 June 1944, D-Day Invasion.

Almost 132,000 men moved against Germany today and over 3,000 of them lost their lives fighting against one man's army.

We let go of the reins today to Dad’s brother PJ. Dad’s health is considerably better than when we first came out here a little more than a week ago. There’s still a long road ahead for all of us. I think they are a little shy of the resources needed to continue without help. I think the tall pole in the tent for the two of them is mobility.

For me and my wife we’re more convicted than ever about reducing the clutter in our lives and having a plan for our departure. It’s not fair for our loved ones to figure out what to do with all the “Stuff” we’ve piled up on our property. (Especially if we are physically separated.)

Important paperwork needs to be gathered and organized for our designated loved one.

5 June 2019, a day in progress.

Our last full day in Pahrump NV, we’ll stay in Vegas tomorrow night.

Dad has a reverse osmosis under the sink and they are buying bottled water because it tastes bad. It’s ok for coffee, but it needs service. Also there is standing water underneath the sink that needs looking into.

Swamp cooler status is a complete changeup since my post earlier. I pulled the cover off the unit tonight and the overflow extension was removed from the drain to winterize it. (So no water is allowed to build up inside the cooler.) I replaced the overflow and it filled up properly. It seems to be running properly although there is a significant amount of particulate in the bottom of the unit that needs to be cleaned out.

The idea of leaving the scooter at the hospital didn’t pan out either. (The hospital may change his room at any time.)

Dad’s gas card and credit card was given back to P today after filling up the white van.

One of the two chargers for the scooter is in the sewing room under the piano/keyboard. The other one is in the garage near the door on the floor. (Not sure if it works.)

P has the red four wheel walker with her for her trip to the doctor.

We are carrying a small suitcase with clothes for Dad, we may carry the travel bottle of oxygen as well with us tomorrow.

All of our belongings will be in the white van at the hospital. We are planning on being there a little after 09:00 AM.

We didn’t know as of today whether the electric bill has been paid. (It’s online, but may not be autopay.)

Dad has received his last dosage for this round of Chemo tonight. They will check his blood and clear him to go home if he passes the physical stress test of walking.

Dad looked better today, he ate good. Completed long conversations and didn’t fall asleep in his chair.

Dad is having an issue with his hip, when he walks on it, he is in considerable pain.

P has a list of all his medications. That list has been moved out of the brown envelope and I don’t know where it ended up.

All three of us were awfully tired at the end of the day today. P is limping pretty badly and looks in pain.

We’ll leave almost a full bag of Dominican Republic coffee. All the beer in the fridge has expired. We just bought the little plastic bottles of coke but I would check anything else in the fridge before drinking it.

The basket in the baby fryer on the counter was dirty and she wanted to soak it. The fryer is full of soapy water.

None of dad’s three thermos’s have been opened since we got here a week ago. So beware…. The coffee pot seems ok unless it’s not closed properly, then it leaks all over the countertop.

Truck keys are on the fridge

There is a 6 port cell phone charger on the kitchen chair next to the wall, although the wires feel awfully stiff. They do work rather well.

The large box next to the kitchen wall is recycling.

Dad’s O2 was 94 today without supplement Oxygen, so I don’t know why they bother during the day. At night he wears the O2 strap.

4 June 2019, a day in progress.

Bringing P home every day has lengthened the days significantly. (Since we’re heading to Vegas right after breakfast and stopping by the store on the way home.) It also means that I post the last update this blog close to midnight EDT.

It is a little frustrating that he still had not received his Chemo treatment after five days in the hospital. The whole reason for going into the Emergency room was to speed up his first treatment and stop the cancer from eating up his organs. Going into IMU may have been the cause of the delayed treatment. (They apparently avoid traversing zones of care, floors.)

Nothing worth repeating about breakfast or the trip to the hospital this morning except maybe the parking lot was completely FULL today.

When I got to dad’s room he was receiving his second Chemo dosage. He had good color and his temperament was about normal, so the Chemo didn’t seem to affect him much.

We went for our lunch break about 11 like we have for the last couple days, they had Taco’s and I pigged out. I had four of them. We headed back up to dad’s room and he got his lunch a short time after his Physical Therapy session. (Taking an assisted walk.)

The coolest thing I’ve seen in days was watching my dad dig into a meal and enjoying it. I am not sure but I think my dad could taste his food for the first time in months! He was eating feverishly until his hip started bothering him. The pain got so bad he called for some pain medication. By the time the doctor showed up he was writhing in pain. The doctor prescribed 4ml of Morphine. It was another 10 minutes before the nurse came in with the syringe. As soon as she administered the dosage dad started drifting away. It wasn’t 3 minutes and dad was sound asleep. S came to visit an hour later and dad was still sound asleep. As a matter of fact dad was still too groggy to follow a conversation at 5PM when we left for the day. S and the nurse requested the doctor change the dosage to 2ml from now on.

Talked to his brother and we confirmed the travel plans for Thursday. P is driven to her appointment at 7 am by a neighbor. M + K packs their belongings and drives the van with the scooter to the hospital at 8AM. Brother rents a car and drives to the hospital at 10AM. P arrives with neighbors to visit Dad sometime after 10:30. We visit with Dad until about 5PM and his brother takes us to the hotel for the evening. He and wife drive the two vehicles and P back to Pahrump. M + K flies home on Friday.

Scooter notes; P’s GoGo scooter is a super piece of equipment. It’s fairly light, it turns on a dime and it’ll easily out run a good jogging pace and not need a charge at the end of the day.

3 June 2019, a day in progress.

F’s brother has gotten tickets for the 6th of June around 10AM and our tickets are currently for tomorrow (Tuesday.) I am loosely thinking we should plan to stay in Vegas Thursday night and fly out early Friday morning even though it will be more costly. *If we can get seats. That way we can spend a day with his brother on Thursday. He can drop us off in Vegas before leaving for Pahrump on Thursday evening. I am 50/50 on his brother renting a car right away. We are driving F’s car that has to be returned to Pahrump sometime Thursday. It would also work flying home on Saturday morning if the flights are crowded. The tall pole in the tent is K is still quite ill with Vertigo and she will have strong opinions about which flight to take home. (We should choose them before seeing F today.)

Dad has Med-port installed and dad had a good hearty lunch. We are waiting on a transport technician to bring us to the 6th floor for Chemo. That should happen today, although it is getting rather late. (It’s 15:30)

So, now that we know dad will still be in this hospital on Thursday, it simplifies things just a little. The tall pole in the tent is that we’ll bring our bags with us to Vegas on Thursday. We need to be dropped off at the hotel Thursday before everyone leaves for Pahrump. We have an early morning flight that will require us to be up at 03:30 on Friday.

Dad is now on the 6th floor and is waiting on Chemo treatment. We left the hospital shortly after moving him to the 6th floor. One thing we noticed is that dad has very small bumps that have showed up on his right side and back. The nurse said that he didn’t think it was anything serious, the nurse on the 6th floor didn’t have a chance to look before we left. I didn’t see them on his chest or his left side, the nurse was loosely thinking some kind of sensitivity to his surroundings.

The hospital sent someone up to gather his meal preferences for the next couple days. (But he was in IMO on the third floor. ) It remains to be seen whether they transfer the requests to the sixth floor. Hope so…

Got a couple laughs, a few more smiles and smirk’s today, so he seems in good spirits given the situation. They checked his weight and I think it was 147 Lbs.

2 June 2019, a day in progress.

I slept much better last night having a CPAP even if it’s my spare. I was too tired to even go out to eat so we had cereal and oatmeal for dinner. (We did have a huge lunch.)

Finding a horizontal space to work takes a little effort

The bathrooms and their bedroom are fairly clear of clutter and clean. The sewing room is pretty cluttered, but would not take a whole lot of effort to support someone sleeping here.

Sewing room/Guest Bedroom

My boss gave me the option of staying a few extra days so it’s time to organize our last days here. I don’t have the expertise to change the valve in the swamp cooler or repair the air conditioner on the toy hauler. I have not been given permission to fix Dad’s wireless so we are using my T-Mobile hotspot that costs about $40/Month for Internet. (He says the wireless password is on his password sheets, I couldn’t get it to work the first few days I was here.) I tried logging on to his router, but the router refused the connection. (It says it is not finished setup. It requires a hard reset on the unit and start the setup process from the beginning.) He has an Amazon Echo, but without access to the wireless, I can’t work on that either.

When I got to this stage with my Mother, I setup cameras on the outside areas of my Mom’s farm with remote access from Atlanta to manage the cameras and recordings. It allowed us to see if they are home (Cars in the driveway) and to look for them if they didn’t answer the phone for an extended time.

There are a few eggs left and I’ve got over half a box of instant oatmeal. K is running low on Soy milk and strawberry mini wheats so we’ll have to make a trip to the store by Monday. We cleaned the coffee pot as best we could when we got here and have been making Dominican coffee every day using Dad’s machine.

House Fridge

I am thinking I can make some headway on the front area of the garage where the bed is. I can clean out the fridge in the garage of all the expired stuff in an hour or less. I did fill his tank sprayer with fluid to kill off the grass, but not had the time to drag it across his yard. I started trying to clear out some space in the garage pull-out couch, but like everywhere else, it is a pile of stuff with no home.

The hardest part when I cleared my mom’s farm is sorting things. What stuff is needed to maintain the property. What stuff does she not want to let go of and we can find space to keep. What on this property is still valuable enough to try and sell for the estate. Who is going to sell it? What is the condition? What’s it worth, does it run/work, can it be safely used/driven?

Main Garage

With my mom, rust destroyed most of what she was trying to save. Here in Pahrump things last a lot longer in storage. It still would take months to sell this stuff on EBAY.

The well died for the second day in a row this morning, we called the “Well Guy” this afternoon and he found insects (Assumed ants) in between the contacts of the pressure switch. He charged $65 for the trip and we’re in good shape.

We brought P home from the hospital and went to Wally World on the way back to get some milk. We also stopped and replenished the gas before returning home.

P said that they performed the test on F’s Aorta this morning. They did not put in the “Med Port” because they successfully got an IV in his arm.

F was eating when we got to the Hospital this morning, he had a feast of food on the tray.

P was sitting on the scooter I brought her yesterday because they took her big lounge chair for F to sit on after the therapist had F walk out to the hallway and back. They are very concerned that he’s going to fall while he is in the hospital.

We went to the Cafeteria for lunch again today, it suits us. Good food and company!

1 June 2019, a day in progress.

At F’s house in Pahrump, P is currently with F at the Hospital Rm. He is to receive a procedure today, but the specifics are very foggy. He had not eaten since we arrived at the hospital at 11AM yesterday until I left around 18:30.

We filled up the car with gas last night, so we are good for the trip back to the hospital today. Might need to check the engine oil?

I’ve connected the water line to F’s garage “Swamp Cooler” and it seems to be functioning well. I have not gotten onto the “Toy Hauler” to see if a capacitor is the reason the A/C is just humming loudly with no cool.

I checked their electric scooter and the batteries were completely dead. I think Pat needs the scooter to get around the hospital. The plan is to bring the scooter to Vegas and try and get batteries at Batteries and Bulbs.

One of my spare CPAPs is at the FEDX sorting facility in Las Vegas. According to them it is still on schedule to arrive by noon at the hospital. I haven’t slept very well without it and it’s been three nights already. I’ve not gotten anything from Delta on where my primary CPAP ended up. I know the plane left here bound for Atlanta then went to Seattle.

I’ve made coffee and four eggs for breakfast. K is having Strawberry frosted mini wheats.

We’ll probably head to the hospital by 9AM. The water float valve in the swamp cooler is stuck causing the water to run out the overflow. I turned it and the water back off before leaving to the hospital.

I tried charging P scooter last night. Both batteries are only about a volt and the chargers were unable to coax them into working again. We stopped by batteries and Bulbs and picked up a pair of batteries on our way to the hospital. K drove the scooter to F’s room without any issues.

My return trip is scheduled for very early Tuesday morning. I’d like to return to Atlanta AFTER F gets back home from the hospital. My personal opinion is that the trek to and from is too much for me and I think it would be too much for P as well. It’s considerably easier with a navigator/co-pilot to make our way through the neighborhoods to the hospital.

I did get my spare CPAP today, need to find out who brought it to the hospital. He went an extra mile to make sure it got to us on a Saturday. (It had no signature required.)

They did an MRI today and Fred said there is Cancer in his head/brain. They did not elaborate on the severity.

We were able to take a break and eat a good lunch for the second time. The hospital does have some pretty good food in their Cafeteria. P was happy to have the scooter to make the trips to the bathrooms and we took it to lunch. She didn’t know the seat swivels allowing her to sit up against the dining table.

K’s Vertigo is still an issue that we are dealing with as best we can, nausea is the tallest pole in the tent. K also gets panicky when there is a lot of commotion. Which with P making phone call after phone call has been pretty difficult for her. I think we’re going going for a walk where it’s quiet…

The doctors do seem to be focused on F’s heart. (Low blood pressure?) They did an extensive echo on his heart today and they want to do one on his Aorta tomorrow.

No chemo today, I think they are not convinced he can endure it without crashing. He is scheduled have a line put in to induce the Chemo if they are able. Monday he’ll get the Chemo fluid that is recommended for small cell lung cancer.

They had a hard time getting a IV put into him this afternoon, I think he’s a little dehydrated. They were talking about getting him on Boost at the hospital to put some weight back on him. (Calories) Two IVs failed they may have to put a MedPort in to give him fluids and the Chemo on Monday.

We are back in Pahrump and I am terribly tired from not sleeping for three days.

31 May 2019, a day in progress.

F fell in the tub this morning, I haven’t talked to him so I don’t have anything else at the moment. P says there is a chair for the tub in their storage container.

We’re planning on leaving around 10AM for Vegas, lots to do.

The flight with my CPAP went back to Atlanta and then to Seattle. I am thinking there is a good chance it’s actually in Atlanta. My sister-in-law went to the homestead and picked up a spare CPAP and sent it to Las Vegas. I should have it by tomorrow.

We got to the hospital on time, his blood pressure was so low that they gave us a Emergency room right away. We’ve been in the room five hours and there is no end in sight. We’ve eaten lunch in the cafeteria because we got so hungry. Dad has not had food since we got here.

They gave him two bags of electrolites and his blood pressure came up significantly. (Which is good)

A Hospital Doctor came by and told us that his room is almost ready on the 6th floor. Chemo is scheduled for tomorrow.

30 May 2019, a day in progress.

Started the day early, we got up at 0500 for the 0600 departure to the airport. The limo was late, he arrived at 06:09 which complicated the entire trip.

Checking in at the airport was a little slow, there were significant lines. The security lines were really long, that took about an hour to get through. All in all we got to the gate after they had boarded our zone.

K went to McDonalds to get an Egg McMuffin and a cup of coffee. Main 1 was almost boarded by the time we boarded. The overhead bins were full for three rows back so I had to put my bag almost 5 rows toward the rear of the plane. My CPAP didn’t fit under the seat so it went into the bin across from us. (That later proved to be fatal because we never retrieved it.)

The weather is cooler than Atlanta, quite comfortable to be outside except in the middle of the day.

Both my parents are a bit frail and need a little help with the larger tasks of owning a home. A good benchmark for a reference is that they cannot take the garbage can out without using the car to pull it.

We have a little experience with long distance help because of N’s move off of her farm. It feels overwhelming to try and help them sort and simply their lives to where they both are able to sustain themselves without help. Virtually every horizontal space is occupied within the home and the garage with piles of stuff/unfinished projects.

K and I had cereal and the parents had pancakes and coffee for breakfast. I filled the sprayer with roundup to knock down the plants on their land. (It’s not grass, maybe weeds, but it looks more like shrubs.)

We have a Doc appointment this morning at 09:30, we’ll be moving into the car about 09:00.

We were going to stay in the “Toy Hauler” but the Air Conditioning died. The fallback was to stay in the garage but it has a pretty strong oil smell I haven’t located yet. We slept on the living room pull-out bed last night. It was comfortable and we slept pretty well cept for not having my CPAP for the first time in 5 years.

Delta Airlines said fill out a lost item form, so I filled out one and submitted it yesterday. It would surely be helpful to have my CPAP for tonight!

It appears that F doesn’t drive much, P is quite rusty, we had a couple close calls coming back from the airport yesterday. Dad will often fall asleep when he settles down in a chair.

Went to the doc and received some news about the cancer. F has small cell lung cancer, which is linked to smoking. This kind of cancer spreads quickly, usually found after the cancer has spread to other organs, responds well to chemotherapy and cannot be completely “cured”. Chemotherapy can stop the cancer from growing for maybe 8 months and then it will come back resistant to the previous treatment.

We do not know what is in the lump about the size of a hunk of silly putty on the top part of dad’s head.

Dad has one ear that resonates with his voice, so he talks softly. He believes the eardrum is perforated.

Dad’s left hip causes him pretty severe discomfort when stressed and makes getting into and out of cars quite difficult for him.

Dad’s right side is quite sore where his liver is. (Also where the biopsy was taken.)

Oxygen bottles and concentrator arrived today, ordered by the doctor for 24hr use to improve his blood oxygen levels.

If things go as planned, we are headed to the hospital tomorrow just before lunch to start chemotherapy. Yes that’s tomorrow… We’ve tossed the idea of dad being in the hospital for 3 to 5 days since F is so weak. We are not sure if P has the energy to stay with him for some part of the day. We are discussing staying in Vegas until the Chemotherapy is complete. That has some benchmarks like getting a CPAP sent out here by Saturday or I’ll have to go home as planned on Tuesday.

Big day tomorrow, M